Blueprints medicine ebook

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Each report has been subjected to a rigorous and independent peer-review process and it represents the position of the National Academies on the statement of task. Sickle cell disease SCD is a genetic condition that affects approximately , people in the United States and millions more globally. Individuals with SCD endure the psychological and physiological toll of repetitive pain as well as side effects from the pain treatments they undergo. Some adults with SCD report reluctance to use health care services, unless as a last resort, due to the racism and discrimination they face in the health care system.

Additionally, many aspects of SCD are inadequately studied, understood, and addressed. This report explores the current guidelines and best practices for the care of patients with SCD and recommends priorities for programs, policies, and research. It also discusses limitations and opportunities for developing national SCD patient registries and surveillance systems, barriers in the healthcare sector associated with SCD and SCT, and the role of patient advocacy and community engagement groups.

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